I am Kira and I am nine years old I get HSP every year , I hate it it is so itchy and annoying. I get it on my leg's and arm's, the real name of HSP is Henoch Schonlein Purpura.
I always get it near my birthday which isn't nice because I miss out on my birthday parties. It is itchy but you can’t itch it because it will go worse. My rash is mostly on my legs, arms and elbows. It is worse around my ankles and feet, it hurts on my feet and I can’t get shoes and socks on when it is very bad but I can manage it sometimes. I DON’T like it when it effects my knees it gets really painful and I can’t move my legs and I find it is very painful to walk, sometimes I need to stretch my legs to exercise them. They have to keep checking my blood pressure and my temperature and check my urine, this is because it can affect your kidneys it hasn't effected my kidney’s but it has effected my intestines.
It is really painful; you can get different types of HSP. The type that I get is very bad and comes on very fast in a few hours. It normally takes around 6-8 weeks for it to clear up. It is rare and my mum is trying to get rid of it now, when I first got it I was 4 years old and I am 9 now and I still get it. I have had it for 5 years. You have to keep calm and I can't can't do much either.
When I am in hospital I make stuff, like one day I made a Halloween sculpture, colored in a plate and made it sparkle I also made a monkey it was fun. In hospital I make loads and loads of stuff I made a lion and I also made a mask. When the blisters pop sometimes blood comes out of them! It is not very nice I don’t like it when the blood comes out it is freaky. It hurts when the doctors pop them in the bath and from outside the bath. I also get a special bath which is colored pink. It is really cool and awesome I love it. The bath is for all the blisters, it also cleans them out, so I need a bath nearly every night, I can only put my slippers on.
I have blood appointments nearly every week, I am used to it now, so it doesn't hurt as much. The blood test are OK and I like that because it means I am getting better.There is a doctor in great Ormond Street who is a HSP doctor,so my mum and dad have kept hold of him and now I am going to be on new tablets until I am eleven, that was his plan. I love my mum and dad even more, because they are trying to get rid of it now, so I am glad and relieved. The doctors check my urine (wee and poo), blood and temperature. I am on new tablets for 2 years then I see how I go, the tablets are called Prednisalone and Azarthone! I have 1 tablet of Azathrone and I go down on the prednisalone, I started on 7 tablets and go down until 0. I take. Azathrone helps to calm down your white cells so I have to rap up a lot and stay warm. I would like to raise money for charity all over the world, to help other people that get HSP so they get better. I would also like to raise awareness because not many people know about it. For the charity I will do biking, climbing, rook climbing and horse ridding (when I am better). I would also like to help people like me by running 500 meters on my own and lots more. I hope every one will be kind and help-full and also support HSP. I will also do lots of sports for charity like bike ridding, climb the tallest mountain, charity rock climbing and also be doing a lot of running.
I always get it near my birthday which isn't nice because I miss out on my birthday parties. It is itchy but you can’t itch it because it will go worse. My rash is mostly on my legs, arms and elbows. It is worse around my ankles and feet, it hurts on my feet and I can’t get shoes and socks on when it is very bad but I can manage it sometimes. I DON’T like it when it effects my knees it gets really painful and I can’t move my legs and I find it is very painful to walk, sometimes I need to stretch my legs to exercise them. They have to keep checking my blood pressure and my temperature and check my urine, this is because it can affect your kidneys it hasn't effected my kidney’s but it has effected my intestines.
It is really painful; you can get different types of HSP. The type that I get is very bad and comes on very fast in a few hours. It normally takes around 6-8 weeks for it to clear up. It is rare and my mum is trying to get rid of it now, when I first got it I was 4 years old and I am 9 now and I still get it. I have had it for 5 years. You have to keep calm and I can't can't do much either.
When I am in hospital I make stuff, like one day I made a Halloween sculpture, colored in a plate and made it sparkle I also made a monkey it was fun. In hospital I make loads and loads of stuff I made a lion and I also made a mask. When the blisters pop sometimes blood comes out of them! It is not very nice I don’t like it when the blood comes out it is freaky. It hurts when the doctors pop them in the bath and from outside the bath. I also get a special bath which is colored pink. It is really cool and awesome I love it. The bath is for all the blisters, it also cleans them out, so I need a bath nearly every night, I can only put my slippers on.
I have blood appointments nearly every week, I am used to it now, so it doesn't hurt as much. The blood test are OK and I like that because it means I am getting better.There is a doctor in great Ormond Street who is a HSP doctor,so my mum and dad have kept hold of him and now I am going to be on new tablets until I am eleven, that was his plan. I love my mum and dad even more, because they are trying to get rid of it now, so I am glad and relieved. The doctors check my urine (wee and poo), blood and temperature. I am on new tablets for 2 years then I see how I go, the tablets are called Prednisalone and Azarthone! I have 1 tablet of Azathrone and I go down on the prednisalone, I started on 7 tablets and go down until 0. I take. Azathrone helps to calm down your white cells so I have to rap up a lot and stay warm. I would like to raise money for charity all over the world, to help other people that get HSP so they get better. I would also like to raise awareness because not many people know about it. For the charity I will do biking, climbing, rook climbing and horse ridding (when I am better). I would also like to help people like me by running 500 meters on my own and lots more. I hope every one will be kind and help-full and also support HSP. I will also do lots of sports for charity like bike ridding, climb the tallest mountain, charity rock climbing and also be doing a lot of running.
